北京市工伤所致截瘫患者生命意义感、领悟社会支持与病耻感的现状及相关性分析

职业与健康 ›› 2025, Vol. 41 ›› Issue (2): 238-243.

北京市工伤所致截瘫患者生命意义感、领悟社会支持与病耻感的现状及相关性分析

李鑫, 孙英岐, 肖阳, 杨阳, 白晋峰

首都医科大学附属北京康复医院骨科二康复中心,北京 100144

收稿日期:2024-11-14 修回日期:2024-12-03 出版日期:2025-01-15 发布日期:2025-12-11
作者简介:李鑫,女,主管护师,主要从事脊髓损伤临床护理与心理干预工作。
基金资助:
北京市残疾人联合会项目基金（GNOAFWGK0275）

Current status and correlation analysis of meaning in life,perceived social support and stigma among paraplegic patients with occupational injuries in Beijing

LI Xin, SUN Yingqi, XIAO Yang, YANG Yang, BAI Jinfeng

Orthopedic Rehabilitation Center II, Beijing Rehabilitation Hospital of Capital Medical University, Beijing 100144, China

Received:2024-11-14 Revised:2024-12-03 Online:2025-01-15 Published:2025-12-11

摘要/Abstract

摘要： 目的调查北京市工伤所致截瘫患者生命意义感、领悟社会支持与病耻感的现状及相关性,为降低工伤截瘫患者病耻感提供数据参考。方法 2023年9月—2024年4月,选取首都医科大学附属北京康复医院收治的207名工伤截瘫患者为研究对象,采用一般资料调查问卷、生命意义感量表、领悟社会支持量表和社会影响量表对其进行问卷调查,并对调查数据进行分析。结果 207名工伤截瘫患者生命意义感得分为（36.60±11.86）分,领悟社会支持得分为（60.92±10.19）分,病耻感得分为（68.77±9.79）分。不同婚姻状况、子女个数、家庭月均收入、截瘫部位及截瘫等级的患者生命意义感得分比较,不同性别、婚姻状况、子女个数、家庭月均收入、截瘫类型及截瘫等级的患者领悟社会支持得分比较,不同性别、年龄、子女个数、家庭月均收入、截瘫类型及截瘫等级的患者病耻感得分比较,差异均有统计学意义（均P<0.05）。生命意义感与领悟社会支持呈正相关（r=0.481,P<0.05）,与病耻感呈负相关（r=-0.430,P<0.05）,领悟社会支持与病耻感呈负相关（r=-0.360,P<0.05）。领悟社会支持在工伤截瘫患者生命意义感与病耻感间起部分中介作用,中介效应值为-0.117,占总效应的26.8%。结论北京市工伤截瘫患者存在一定程度的病耻感,可通过提高其生命意义感和领悟社会支持来降低病耻感。

关键词: 工伤, 截瘫患者, 生命意义感, 领悟社会支持, 病耻感

Abstract: Objective To investigate the current status and correlation of the meaning of life,perceived social support and stigma of paraplegia patients caused by occupational injury in Beijing,and provide data reference for reducing stigma of paraplegia patients caused by occupational injury. Methods From September 2023 to April 2024,a total of 207 patients with paraplegia due to occupational injury were selected as the research objects. The general information questionnaire,the Chinese version of the meaning in life scale,perceived social support scale and social impact scale were used to conduct a questionnaire survey,and the survey data were analyzed. Results The life meaning scores of 207 paraplegics were （36.60±11.86）points,the perceived social support scores were （60.92±10.19）points,and the stigma scores were （68.77±9.79）points. There were statistically significant differences in life meaning scores among patients with different marital status,number of children,average monthly family income,paraplegic type and paraplegic grade, perceived social support scores among patients with different gender,marital status,number of children,average monthly family income,paraplegic type and paraplegicgrade,and stigma scores among patients with different gender,age,number of children,average monthly family income,paraplegic type and paraplegic grade（all P<0.05）. The meaning of life was positively correlated with perceived social support（r=0.481,P<0.05）,and negatively correlated with stigma（r=-0.430,P<0.05）,and perceived social support was negatively correlated with stigma（r=-0.360,P<0.05）. The perceived social support played a partial mediating role in the relationship between meaning of life and stigma,and the mediating effect was -0.117,accounting for 26.8% of the total effect. Conclusion Patients with paraplegia due to occupational injury from Beijing have a certain degree of stigma,which can be effectively reduced by improving their sense of life meaning and perceived social support.

Key words: Occupational injury, Paraplegia patients, Meaning in life, Perceived social support, Stigma

中图分类号:

R181.3⁺1

李鑫, 孙英岐, 肖阳, 杨阳, 白晋峰. 北京市工伤所致截瘫患者生命意义感、领悟社会支持与病耻感的现状及相关性分析. [J]职业与健康, 2025, 41(2): 238-243.

LI Xin, SUN Yingqi, XIAO Yang, YANG Yang, BAI Jinfeng. Current status and correlation analysis of meaning in life,perceived social support and stigma among paraplegic patients with occupational injuries in Beijing. [J]OCCUPATION AND HEALTH, 2025, 41(2): 238-243.

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