同伴支持在青年恶性肿瘤患者中的研究进展

摘要/Abstract

摘要： 同伴支持指具有相同经历或体验,且年龄、性格、生活背景或疾病经历等特征相似的人聚在一起,互相分享情感、信息、应对技能等内容的社会支持形式,已广泛应用于慢性病患者的健康管理中,并取得了良好的干预效果。目前我国对青年恶性肿瘤群体的研究尚不成熟,所以本文对同伴支持的概述、效应机制及在青年恶性肿瘤患者中的研究进展进行了综述,包括同伴支持的应用形式、干预效果及现存的实施挑战,并为促进在我国青年恶性肿瘤群体中开展同伴支持项目提供建议,为青年恶性肿瘤患者制定合理的同伴支持方案提供理论依据和实践方向。

关键词: 青年, 癌症, 同伴支持, 护理, 综述

Abstract: The peer support refers to a form of social support in which people with the same experience and similar age,personality,life background and disease experience get together to share emotions,information,coping skills,which has been widely used in the health management of patients with chronic diseases and has achieved good intervention results. At present,the research on the youth cancer population in China is not mature,so this paper reviews the overview of peer support,the mechanism of effect and its research progress in young cancer patients,including the application form of peer support,the intervention effect and the existing implementation challenges,and provides suggestions for promoting the development of peer support projects in China's youth cancer group,in order to provide theoretical basis and practical direction for young cancer patients to develop reasonable peer support programs.

Key words: Youth, Cancer, Peer support, Nursing, Overview

中图分类号:

R181.3

于万慧, 迟嘉婧, 高晓, 汤俊杰, 张歆睿, 杨丽娟. 同伴支持在青年恶性肿瘤患者中的研究进展. [J]职业与健康, 2023, 39(6): 850-854.

YU Wan-hui, CHI Jia-jing, GAO Xiao, TANG Jun-jie, ZHANG Xin-rui, YANG Li-juan. Advances of peer support in young cancer patients. [J]OCCUPATION AND HEALTH, 2023, 39(6): 850-854.

参考文献

[1] BRIGHT C J,REULEN R C,WINTER D L,et al.Risk of subsequent primary neoplasms in survivors of adolescent and young adult cancer (Teenage and Young Adult Cancer Survivor Study):a population-based,cohort study[J].Lancet Oncol,2019,20(4):531-545.
[2] ALVAREZ E M,FORCE L M,XU R,et al.The global burden of adolescent and young adult cancer in 2019:a systematic analysis for the Global Burden of Disease Study 2019[J].Lancet Oncol,2022,23(1):27-52.
[3] BEYER A,FERRARI A,WHELAN J,et al.Global assessment of cancer incidence and survival in adolescents and young adults[J].Pediatr Blood Cancer,2017,64(9):e26497.
[4] SUH E,STRATTON K L,LEISENRING W M,et al.Late mortality and chronic health conditions in long-term survivors of early-adolescent and young adult cancers:a retrospective cohort analysis from the Childhood Cancer Survivor Study[J].Lancet Oncol,2020,21(3):421-435.
[5] BARR R D,FERRARI A,RIES L,et al.Cancer in adolescents and young adults:a narrative review of the current status and a view of the future[J].JAMA pediatr,2016,170(5):495-501.
[6] LEGG M,OCCHIPINTI S,YOUL P,et al.Needy or resilient? How women with breast cancer think about peer support[J].Psychooncology,2017,26(12):2307-2310.
[7] BENDER J L,PURI N,SALIH S,et al.Peer support needs and preferences for digital peer navigation among adolescent and young adults with cancer:A canadian cross-sectional survey[J].Curr Oncol,2022,29(2):1163-1175.
[8] DENNIS C L.Peer support within a health care context:a concept analysis[J].Int J Nurs Stud,2003,40(3):321-332.
[9] HOEY L M,IEROPOLI S C,WHITE V M,et al.Systematic review of peer-support programs for people with cancer[J].Patient Educ Couns,2008,70(3):315-337.
[10] FOLKMAN S,LAZARUS R S,GRUEN R J,et al.Appraisal,coping,health status,and psychological symptoms[J].J Pers Soc Psychol,1986,50(3):571.
[11] STEWART M J,TILDEN V P.The contributions of nursing science to social support[J].Int J Nurs Stud,1995,32(6):535-544.
[12] 王明虹,于德华,张斌,等.同伴支持在恶性肿瘤领域的研究进展[J].中华全科医学,2016,14(9):1550-1552.
[13] GRIFFITHS C,PANTELI N,BRUNTON D,et al.Designing and evaluating the acceptability of Realshare:an online support community for teenagers and young adults with cancer[J].J Health Psychol,2015,20(12):1589-1601.
[14] KAAL S E J,HUSSON O,VAN DARTEL F,et al.Online support community for adolescents and young adults(AYAs) with cancer:user statistics,evaluation,and content analysis[J].Patient Prefer Adherence,2018,12:2615.
[15] LOVE B,CROOK B,THOMPSON C M,et al.Exploring psychosocial support online:a content analysis of messages in an adolescent and young adult cancer community[J].Cyberpsychol Behav Soc Netw,2012,15(10):555-559.
[16] GAULIN N L.The experience of adolescents using online social networks to cope with their cancer:Exploring GroupLoop's discussion board and online support groups[D].Boston:Massachusetts School of Professional Psychology,2006.
[17] HIRAYAMA T,KOJIMA R,UDAGAWA R,et al.A questionnaire survey on Adolescent and Young Adult Hiroba,a peer support system for adolescent and young adult cancer patients at a designated cancer center in Japan[J].J Adolesc Young Adult Oncol,2002,11(3):309-315.
[18] MOADEL-ROBBLEE A,CAMACHO F,MILNER G E,et al.Peer navigation-delivered loving kindness meditation:A pilot project[J].Complement Ther Med,2021,57:102661.
[19] CASILLAS J N,SCHWARTZ L F,CRESPI C M,et al.The use of mobile technology and peer navigation to promote adolescent and young adult(AYA) cancer survivorship care:results of a randomized controlled trial[J].J Cancer Surviv,2019,13(4):580-592.
[20] STINSON JN,WHITE M,BREAKEY V,et al.Perspectives on quality and content of information on the Internet for adolescents with cancer[J].Pediatr Blood Cancer,2011,57(1):97-104
[21] LAZARD A J,SAFFER A J,HORRELL L,et al.Peer-to-peer connections:Perceptions of a social support app designed for young adults with cancer[J].Psychooncology,2020,29(1):173-181.
[22] ELSBERND A,HJERMING M,VISLER C,et al.Cocreated smartphone app to improve the quality of life of adolescents and young adults with cancer (Kræftværket):protocol for a quantitative and qualitative evaluation[J].JMIR Res Protoc,2018,7(5):e10098.
[23] JOHNSON R H,ANDERS C K,LITTON J K,et al.Breast cancer in adolescents and young adults[J].Pediatr Blood Cancer,2018,65(12):e27397.
[24] 乔婷婷,陈丹丹,郑蔚,等.年轻女性癌症患者生育忧虑现状及其影响因素分析[J].现代预防医学,2017,44(1):64-68.
[25] HOTCHKISS M E,AHMAD Z N,FORD J S.Cancer-peer connection in the context of adolescent and young adult cancer:a qualitative exploration[J].J Adolesc Young Adult Oncol,2023,12(1),83-92.
[26] JIN Z,GRIFFITH M A,ROSENTHAL A C.Identifying and meeting the needs of adolescents and young adults with cancer[J].Curr Oncol Rep,2021,23(2):1-10.
[27] KENT E E,SMITH A W,KEEGAN T H M,et al.Talking about cancer and meeting peer survivors:social information needs of adolescents and young adults diagnosed with cancer[J].J Adolesc Young Adult Oncol,2013,2(2):44-52.
[28] BARAKAT L P,GALTIERI L R,SZALDA D,et al.Assessing the psychosocial needs and program preferences of adolescents and young adults with cancer[J].Support Care Cancer,2016,24(2):823-832.
[29] LAZARD A J,COLLINS M K R,HEDRICK A,et al.Using social media for peer-to-peer cancer support:Interviews with young adults with cancer[J].JMIR Cancer,2021,7(3):e28234.
[30] ELSBERND A,PEDERSEN K J,BOISEN K A,et al.“on Your Own”:Adolescent and young adult cancer survivors' experience of managing return to secondary or higher education in Denmark[J].J Adolesc Young Adult Oncol,2018,7(5):618-625.
[31] 汤琳,孟爱凤,智晓旭,等.青年癌症患者自我认同体验的质性研究[J].中国实用护理杂志,2021,37(36):2842-2847.
[32] GOOSSENS J,DELBAERE I,BEECKMAN D,et al.Communication difficulties and the experience of loneliness in patients with cancer dealing with fertility issues:a qualitative study[J].Oncol Nurs Forum,2015,42(1):34-43.
[33] BREUER N,SENDER A,DANECK L,et al.How do young adults with cancer perceive social support? A qualitative study[J].J Psychosoc Oncol,2017,35(3):292-308.
[34] HIRAYAMA T,KOJIMA R,UDAGAWA R,et al.A hospital-based online patients support program,online adolescent and young adult hiroba,for adolescent and young adult cancer patients at a designated cancer centerin Japan[J].J Adolesc Young Adult Oncol,2022,11(6):588-595.
[35] ALBERS T,WEISS L A,SLEEMAN S H E,et al.Evaluation of a positive psychology group intervention in nature for young cancer survivors to promote well-being and post-cancer identity development[J].J Adolesc Young Adult Oncol,2021,10(6):726-734.
[36] MCDONNELL G A,POPE A W,FORD J S.Associations among perceived parent and peer support,self-esteem,and cancer-related worry in adolescent and Young Adult Cancer Survivors[J].J Adolesc Young Adult Oncol,2021,10(2):209-216.
[37] LAZARD A J,COLLINS M K R,HEDRICK A,et al.Initiation and changes in use of social media for peer support among young adult cancer patients and survivors[J].Psychooncology,2021,30(11):1859-1865.
[38] LAZARD A J,COLLINS M K R,HEDRICK A,et al.Using social media for peer-to-peer cancer support:Interviews with young adults with cancer[J].JMIR Cancer,2021,7(3):e28234.